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Mission statement

The aim of the EWGGD is to promote clinical and basic research into Gaucher disease for the ultimate purpose of improving the lives of patients with this disease; it brings together clinicians, scientists and patients in an open forum for discussion on all aspects of the condition.

The opportunity for presenting unpublished scientific data as well as free discussion is a central premise of the Group. For the dissemination of information a two yearly workshop is organized. Although a limited number of representatives from industrial partners are invited to attend the meetings, the Working Group has always been an independent organization with a charitable purpose.


Contact

Marieke Biegstraaten

Department of Internal Medicine, Division of Endocrinology and Metabolism, F5-169
Academic Medical Center, University of Amsterdam
PO box 22700
1100 DE Amsterdam, the Netherlands

- Tel: +31 20 5668315
- Fax: +31 20 6917682
- Email: m.biegstraaten amc.uva.nl

In charge of the website :
- Nadia Belmatoug: nadia.belmatoug bjn.aphp.fr
- Samira Zebiche : samira.zebiche bjn.aphp.fr

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