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Members

The EWGGD represents clinicians and researchers with an interest in Gaucher disease. In February, 2012 the Group reached a formal status. The EWGGD is affiliated to the European Gaucher Alliance (EGA), representing the interests of the patients. This alliance was formed shortly after the founding of the EWGGD and reached a more formal status in 2008, when during the EGA meeting patient representatives of 24 countries unanimously agreed to incorporate the EGA into a formal charitable body, to speak for Gaucher patients on a Pan European level.


Contact

Marieke Biegstraaten

Department of Internal Medicine, Division of Endocrinology and Metabolism, F5-169
Academic Medical Center, University of Amsterdam
PO box 22700
1100 DE Amsterdam, the Netherlands

- Tel: +31 20 5668315
- Fax: +31 20 6917682
- Email: m.biegstraaten amc.uva.nl

In charge of the website :
- Nadia Belmatoug: nadia.belmatoug bjn.aphp.fr
- Samira Zebiche : samira.zebiche bjn.aphp.fr

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