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The EWGGD represents clinicians and researchers with an interest in Gaucher disease. In February, 2012 the Group reached a formal status. The EWGGD is affiliated to the European Gaucher Alliance (EGA), representing the interests of the patients. This alliance was formed shortly after the founding of the EWGGD and reached a more formal status in 2008, when during the EGA meeting patient representatives of 24 countries unanimously agreed to incorporate the EGA into a formal charitable body, to speak for Gaucher patients on a Pan European level.


Mrs. A.H.M. Veerhuis

Academic Medical Center

Dept of Endocrinology and Metabolism, F5-254

Meibergdreef 9

1105 AZ Amsterdam

T 0031-20-5664558

E a.h.veerhuis

In charge of the website :
- Nadia Belmatoug: nadia.belmatoug
- Samira Zebiche : samira.zebiche

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