1. Presentation of the website

In accordance with Article 6 of Law No. 2004-575 of 21 June 2004 on confidence in the digital economy, users of the www.ewggd.com website are informed of the identity of the various parties involved in its implementation and monitoring:

Owner: The European Working Group for Gaucher Disease (EWGGD), non-profit scientific organisation, which has been founded in 1991 and has been registered by Dutch law by Feb, 23, 2012. The registration number is 54763304; registered in Amsterdam, the Netherlands.

Website creator: Overcome

Publication Manager: Andrea Dardis -andrea.dardis@asufc.sanita.fvg.it

Host: OVH – 2 rue Kellermann – 59100 Roubaix – France


  1. General conditions of use of the website and the services offered

The use of the website complies the full acceptance of the terms and conditions described below. These terms of use may be modified or supplemented at any time, users of the www.ewggd.com website are invited to consult them regularly.

This website is normally accessible to users at any time. However, an interruption due to technical maintenance may be decided by www.ewggd.com website, which will then endeavour to communicate to users the dates and times of the intervention.

The www.ewggd.com website is updated regularly. In the same way, the legal notices can be modified at any time: they nevertheless impose themselves on the user, who is invited to refer to them as often as possible in order to become acquainted with them.


  1. Description of services provided

The aim of the www.ewggd.com website is to provide information on all of the organisation’s activities.

The site strives to provide as accurate information as possible. However, it cannot be held responsible for omissions, inaccuracies and deficiencies in the update, whether by the owner, creator or by the third-party partners who provide this information.

All the information indicated on the www.ewggd.com website are given as an indication, and are likely to evolve. In addition, the information on the www.ewggd.com website is not exhaustive. They are given and are subject to modifications having been made since it went live.


  1. Contractual limitations on technical data

The website cannot be held responsible for any material damage related to the use of the site. Moreover, the user of the site undertakes to access the site using recent equipment, free of viruses and with a latest-generation browser that is up-to-date.

  1. Intellectual property and counterfeiting

The EWGGD owns the intellectual property rights or has the rights to use all the items available on the website, including text, images, graphics, logos, icons, sounds, software.

Any reproduction, representation, modification, publication, adaptation of all or part of the elements of the website, whatever the means or process used, is prohibited, except with prior written permission by The EWGGD.

Any unauthorized use of the website or any of the elements it contains will be considered as constituting an infringement and prosecuted in accordance with the provisions of Articles L. 335-2 and following of the Intellectual Property Code.


  1. Limitations of liability

The EWGGD or Overcome cannot be held liable for any direct or indirect damage to the user’s equipment when accessing the www.ewggd.com website, resulting from the use of equipment that does not meet the specifications in point 4, or the appearance of a bug or incompatibility.

The EWGGD or Overcome cannot be held responsible for consequential damages (such as a loss of market or loss of opportunity) resulting from the use of the www.ewggd.com website

Interactive spaces (possibility to ask questions in the contact area) are available to users.


  1. Management of personal data

In France, personal data are protected in particular by the law n ° 78-87 of January 6th, 1978, the law n ° 2004-801 of August 6th, 2004, the article L. 226-13 of the Penal Code and the European directive of the October 24, 1995.

On the occasions of the use of the www.ewggd.com site, the following may be collected: the URL of the links through which the user accessed the www.ewggd.com site, the user’s access provider, the user’s Internet Protocol (IP) address.

In any case, the EWGGD only collects personal information about the user for the purpose of certain services offered by the www.ewggd.com website. The user provides this information with full knowledge of the facts, in particular when they proceed to input this information themselves. It is then specified to the user of the www.ewggd.com website the obligation or not to provide this information.

In accordance with the provisions of Article 38 et seq. Of Law 78-17 of 6 January 1978 relating to data, files and freedoms, all users have a right of access, rectification and opposition to personal data concerning them, by making a written and signed request, accompanied by a copy of their identity document along with the signature of the holder of the document, specifying the address to which the answer must be sent.


No personal information of the user of the www.ewggd.com site website is published without the knowledge of the user, exchanged, transferred, assigned or sold on any support to third parties. The aforementioned website is declared to the CNIL under the number (currently being obtained).

The databases are protected by the provisions of the Act of 1 July 1998 transposing Directive 96/9 of 11 March 1996 on the legal protection of databases.


  1. Hypertext links and cookies

The www.ewggd.com website contains a number of hypertext links to other websites, set up with the permission of The EWGGD and Overcome. The navigation on the www.ewggd.com website is likely to cause the installation of cookie (s) on the computer of the user. A cookie is a small file, which does not allow the identification of the user, but which records information relating to the navigation of a computer on a website. The data thus obtained are intended to facilitate subsequent navigation on the website, and are also intended to allow various measures of attendance.

The refusal to install a cookie may result in the inability of accessing certain services.


  1. Applicable law and jurisdiction

Any dispute in connection with the use of the www.ewggd.com website is subject to French law. It is made exclusive jurisdiction to the competent courts of Paris.